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Photo by Stephanie Sinclair @stephsinclairpix | Model and activist Diandra Forrest, featured in the 2017 @natgeo story "The Perils of Pale," uses her prominence to celebrate albinism and combat prejudice and bullying. Diandra, an African American, was the first woman with albinism to sign with a major modeling firm. Her distinctive skin, hair, and eyes are part of her allure. But like many others with albinism, she was ridiculed as a child.
Today, June 13, is International Albinism Awareness Day. Albinism is a genetic condition characterized by low levels of melanin, which provides skin pigmentation. It affects 1 in 20,000 people globally, across all racial and ethnic groups, though it continues to be misunderstood in many communities. Many people with albinism are discriminated against, and even attacked, for their unique appearance. Many others lack adequate access to medical resources for conditions highly associated with albinism, such as low vision and skin cancer. To learn more about the issue, please follow me at @stephsinclairpix. @nydgfoundation #nygdcolorfull #InternationalAlbinismAwarenessDay #IAAD #Albinism